Global Survey

EXPLORE HOW NEW INSIGHTS MAY HELP YOU MANAGE LIVING WITH ULCERATIVE COLITIS.

What is the UC Narrative?

The UC Narrative is a global initiative created by Pfizer to engage the UC community to help identify how people living with ulcerative colitis are impacted by the disease. The goal is to identify new ideas and resources that can help enhance the way patients and physicians understand and communicate their concerns about living with UC. This survey was done in collaboration with UC patients, leading experts, and patient organizations.

Ulcerative colitis is a chronic, debilitating, and often misunderstood inflammatory bowel disease. That’s why we must work together to turn the insights from this survey into actions that can help identify real-world needs and concerns about living with UC. Get the facts below and learn how you can use these insights in your life.

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A 2017 U.S. survey of 301 adults living with ulcerative colitis (UC) and 149 gastroenterologists (GIs) tested patients’ knowledge of UC – and physicians’ perceptions about their patients’ knowledge. Here are a few of the findings from the survey that show there might be an opportunity to improve education and management of the disease.

For information about the design of the UC Narrative Survey, click here.

Colon

19% of adults with UC were not aware that uncontrolled inflammation of the colon is a risk factor for colorectal cancer. (n=57/301)

Colon

74% of gastroenterologists (GIs) thought that their UC patients understood that uncontrolled inflammation of the colon is a risk factor for colorectal cancer. (n=111/149)

Abdomen

28% of adults with UC were not aware that UC may be associated with other conditions outside the colon. (n=84/301)

Abdomen

67% of gastroenterologists (GIs) thought that their patients understood that UC may be associated with other conditions outside the colon. (n=99/149)

Meditation Yoga

34% of adults living with UC wished that their gastroenterologist (GI) better understood how much UC impacts their mental health. (n=102/301)

Meditation Yoga

And 49% of GIs said they never discuss the impact of UC on patients’ mental/emotional health. (n=74/149)

Clock

56% of adults with UC said they wish they had more time at appointments with their gastroenterologist (GI). (n=170/301)

Clock

42% of UC patients said their GI rarely has time to address all of their questions/concerns. (n=126/301)

Conversation Bubble

45% of UC patients said they often regret not telling their gastroenterologist (GI) more during visits. (n=135/301)

Conversation Bubble

While 40% said they worry that if they ask too many questions to their GI, they will be seen as a difficult patient and it will affect their quality of care. (n=119/301)

Hands

55% of patients said they agree that patient advocacy organizations are important to the management of UC. (n=167/301)

Hands

86% of gastroenterologists (GIs) said they agree that patient advocacy organizations are important to the management of UC. (n=128/149)

UC Narrative Infographics
THE UC NARRATIVE INFOGRAPHICS.