EXPLORE THE UC NARRATIVE – A GLOBAL SURVEY
TO SUPPORT THE UC COMMUNITY.
EXPLORE HOW NEW INSIGHTS MAY HELP YOU MANAGE LIVING WITH ULCERATIVE COLITIS.
What is the UC Narrative?
The UC Narrative is a global initiative created by Pfizer to engage the UC community to help identify how people living with ulcerative colitis are impacted by the disease. The goal is to identify new ideas and resources that can help enhance the way patients and physicians understand and communicate their concerns about living with UC. This survey was done in collaboration with UC patients, leading experts, and patient organizations.
Ulcerative colitis is a chronic, debilitating, and often misunderstood inflammatory bowel disease. That’s why we must work together to turn the insights from this survey into actions that can help identify real-world needs and concerns about living with UC. Get the facts below and learn how you can use these insights in your life.
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A 2017 U.S. survey of 301 adults living with ulcerative colitis (UC) and 149 gastroenterologists (GIs) tested patients’ knowledge of UC – and physicians’ perceptions about their patients’ knowledge. Here are a few of the findings from the survey that show there might be an opportunity to improve education and management of the disease.
For information about the design of the UC Narrative Survey,
19% of adults with UC were not aware that uncontrolled inflammation of the colon is a risk factor for colorectal cancer. (n=57/301)
74% of gastroenterologists (GIs) thought that their UC patients understood that uncontrolled inflammation of the colon is a risk factor for colorectal cancer. (n=111/149)
28% of adults with UC were not aware that UC may be associated with other conditions outside the colon. (n=84/301)
67% of gastroenterologists (GIs) thought that their patients understood that UC may be associated with other conditions outside the colon. (n=99/149)
34% of adults living with UC wished that their gastroenterologist (GI) better understood how much UC impacts their mental health. (n=102/301)
And 49% of GIs said they never discuss the impact of UC on patients’ mental/emotional health. (n=74/149)
56% of adults with UC said they wish they had more time at appointments with their gastroenterologist (GI). (n=170/301)
42% of UC patients said their GI rarely has time to address all of their questions/concerns. (n=126/301)
45% of UC patients said they often regret not telling their gastroenterologist (GI) more during visits. (n=135/301)
40% said they worry that if they ask too many questions to their GI, they will be seen as a difficult patient and it will affect their quality of care. (n=119/301)
55% of patients said they agree that patient advocacy organizations are important to the management of UC. (n=167/301)
86% of gastroenterologists (GIs) said they agree that patient advocacy organizations are important to the management of UC. (n=128/149)
*Based on the U.S. Portion of the 2017 UC Narrative Survey, created by Pfizer in collaboration with patients, providers, and patient organizations. Data on file.